Community Empowerment through Health Information
You are a chronic health patient. Do you know where your data is?
Patient Empowerment
Patient Dignity
Patient Flourishing
THE MULTIBILLION-DOLLAR HEALTH DATA AND DRUG DEVELOPMENT ECOSYSTEM, HARVESTS PATIENT DATA AND IS FUELED BY PATIENT DATA.
what can you do?
Be at the helm of research and your own care.
Know your data, own your data, and leverage your data to have more of a say. Only patients can center patients in the multibillion-dollar health data and drug approval ecosystem.
LET'S CREATE A NEW KIND
OF HEALTHCARE ORGANIZATION:
*
ONE OWNED BY PATIENTS
AND LED BY PATIENTS
Take a first step, submit your contact information:
Know your data, own your data, and leverage your data to have more of a say. Only patients can center patients in the multibillion-dollar health data and drug approval ecosystem.
LET'S CREATE A NEW KIND
OF HEALTHCARE ORGANIZATION:
*
ONE OWNED BY PATIENTS
AND LED BY PATIENTS
Take a first step, submit your contact information:
OPERATIONAL RATIONALE
Disclaimer: There are no conspiracy theories here. What is being proposed is the disruption of a system that is ridden with perverse incentives due to its structure, not to intent.
We now have the technology needed to coordinate use of data in the aggregate via meaningful patient communities or cohorts, while retaining its ownership and control at the individual level.
WITH CEtHI WE CAN PURSUE THIS GOAL TOGETHER THROUGH DIFFERENT FORMS OF ENGAGEMENT,
EACH WITH VALUE ADD TO YOU
EACH WITH VALUE ADD TO YOU
OPPORTUNITIES FOR ENGAGEMENT
For Patients
- Patient owned EHR (POE), for ownership, understanding and control of your dataUsing blockchain technology you will be able to collect your data behind a smart contract, in a way that will allow you to enforce your ownership and have complete control of your data and its use in research moving forward. The patient owned EHR (POE) will articulate with patient assigned AI agents that will help with continuous collection and interpretation of data, with processing of data in real time.
- Precision Care ManagementInstead of managing patients for providers, CEtHI will manage care teams for patients. Through partnerships with primary care providers and nurse practitioners, we'll create a new model of healthcare integration - one where the system revolves around the patient, not the institution. This service will be covered by insurance.
- Health Collaboration HubUnlike typical support groups or FB groups, this platform provides structured activities every week covering thematically related research, data collection, interactions with providers and the healthcare system, and personal patient stories. Most importantly, you will be able to connect to other patients with similarities to your case as you access activities and content of interest.
- Regulatory Impact and ResearchThroughout CEtHI's development, we'll pursue research examining the ethical and legal implications of patient data ownership and decision-making rights. This isn't research done on patients - it is research done with patients, by patients. Working with our patient communities, we'll gather evidence and build cases for regulatory change that recognizes patients' rightful place at the center of healthcare and healthcare research.
COHORTS
Thoughtful and proper definition of the cohorts is paramount for success.
CEtHI will start with two well-defined cohorts.
CEtHI will start with two well-defined cohorts.
Connect
Phone: +1-216-389-9412
Email: paola@cethi.org
Email: paola@cethi.org
Patient Empowerment. Patient Dignity. Patient Flourishing.
