Using blockchain technology you will be able to collect your data behind a smart contract, in a way that will allow you to enforce your ownership and have complete control of your data and its use in research moving forward. The patient owned EHR (POE) will articulate with patient assigned AI agents that will help with continuous collection and interpretation of data, with processing of data in real time.

Instead of managing patients for providers, CEtHI will manage care teams for patients. Through partnerships with primary care providers and nurse practitioners, we'll create a new model of healthcare integration - one where the system revolves around the patient, not the institution. This service will be covered by insurance.

Unlike typical support groups or FB groups, this platform provides structured activities every week covering thematically related research, data collection, interactions with providers and the healthcare system, and personal patient stories. Most importantly, you will be able to connect to other patients with similarities to your case as you access activities and content of interest.

Throughout CEtHI's development, we'll pursue research examining the ethical and legal implications of patient data ownership and decision-making rights. This isn't research done on patients - it is research done with patients, by patients. Working with our patient communities, we'll gather evidence and build cases for regulatory change that recognizes patients' rightful place at the center of healthcare and healthcare research.